What the Charity Trustees Do

The Irish Lung Fibrosis Association (ILFA) was established as a charity in 2002 in memory of Fergus Goodbody. Charitable Exemption Number  CHY 15462

ILFA registered as a company in 2003 and is registered with the Company Registration Office.
Company registration number 367940

ILFA has a Memorandum of Articles that specifies our aims to promote Advocacy, Research, Education, and Support in lung fibrosis.

ILFA’s funding comes primarily from individual and corporate donations and from the fundraising activities of our supporters. All money raised goes towards meeting our aims and helping the patients and families of those affected by Lung Fibrosis.

ILFA works to ensure our aims and mission are fulfilled through patient-centred projects and activities, and to ensure the charity is compliant in respect to all aspect of governance.

Financial accounts are prepared by a contracted Accountancy firm and audited yearly by an independent auditor approved by members at the AGM. Accounts are subsequently forwarded to the Company’s Registration Office, in accordance with the legal requirements for annual returns.

The AGM takes place yearly in Dublin or online. The audited financial accounts for the year are presented to those present and the auditors are re-appointed for the following year.

ILFA is a member of several alliances including the Irish Donor Network (IDN), the Irish Respiratory Coalition and the EU-Pulmonary Fibrosis Federation (EU-PFF).

ILFA maintains a database of members’ names and addresses for those registered with the charity and in line with GDPR.

Operational Governance

  • The CEO has delegated authorities granted by the Board for operational activities.
  • Oversight of the executive, identification and mitigation of risk, and strategic direction are part of its reserved duties. The following decisions are reserved for the Board to make and approve:
    • The Company’s strategic plans and annual operating budgets;
    • Projects outside the scope of the strategic plan;
    • Business acquisitions and disposals;
    • Decisions on Litigation;
    • Appointment/Removal of subcommittee Chairs and Members;
    • Appointment/Removal of Chief Executive Officer;
    • Appointment/Removal of Auditors;
    • Approval of Borrowing/Finance Facilities;
    • Approval of Supplier Contracts with term exceeding one year or financial liability on ILFA
      exceeding €10,000;
    • Ongoing Review of Risk and Internal Controls;