ILFA’s Committment to Research
Research is one of ILFA’s primary aims and the ILFA committee recognises the value of all types of research to advance our understanding of lung fibrosis.
ILFA has a strong research focus and we regularly conduct research surveys with our members. Our research data have been presented our research data at national and international congresses as oral presentations and poster presentations at the Irish Thoracic Society scientific meeting and the European Respiratory Society Congress.
ILFA has collaborated with international healthcare professionals and organisations including the European Respiratory Society Taskforce on Interstitial Lung Disease and the European Lung Foundation.
Recent research activities and achievements
- In 2021, ILFA’s research findings from a survey conducted during the first wave of Covid 19 were published in the Irish Medical Journal. Click the links below to read the articlesPerspectives of Interstitial Lung Disease Healthcare Professionals during Covid19Perspectives of Interstitial Lung Disease Patients and Carers during COVID-19
- ILFA’s World Café on Palliative care and Planning for the Future took place in June 2018. A team of healthcare professionals, patients and carers collaborated to produce a manuscript describing the methodology and findings and this was published in the British Medical Journal Supportive & Palliative Care in October 2021. Click the link below to read the article.
Fibrotic interstitial lung disease – palliative care needs: a World-Café qualitative study
- ILFA became a member of Health Research Charities Ireland in September 2021.
- In 2019, ILFA invited submissions for a share of €30,000 research funding into lung fibrosis in Ireland. Five projects were successful. Funding was to be awarded in stages on commencement of the research project. Unfortunately, the emergence of the Covid19 pandemic impacted significantly on research activities in 2020-2021 and some projects are still to commence. Three of the funded projects involve laboratory-based research with clinical applications, 1 project will focus on remote heath monitoring of lung fibrosis patients using an app and Bluetooth technology and is due to start shortly and funding was awarded to the Irish Thoracic Society’s Idiopathic Pulmonary Fibrosis registry.
- In 2021, ILFA conducted a patient survey to understand the challanges faced by lung fibrosis patients accessing healthcare services and supports in Ireland. ILFA_Member_Service_Needs_Survey 2021
The findings of this survey will be published soon.