ILFA Christmas Cards

Please consider supporting the Irish Lung Fibrosis Association (ILFA) this Christmas. Our Christmas cards are made in Ireland and are available to order from ILFA by emailing info@ilfa.ie or calling 086 057 0310
1 pack of 10 cards (2 cards each of 5 designs) costs €6
2 packs of cards cost €10
We would be grateful for any donation towards postage and packing costs if you can afford this.
ILFA Survey !
https://bit.ly/ilfaSOCWEB
A national Interstitial Lung Disease (ILD) Registry is currently proposed to collect information about the number of people diagnosed with lung fibrosis in Ireland. ILFA is seeking the input of patients and healthcare professionals to identify the priorities that should be included in this registry. The purpose of this survey is to help guide those developing the registry to make sure that it meets the needs of all stakeholders.
Patient registries are designed to collect anonymous, relevant, and appropriate information about people diagnosed with specific health conditions. Registry information is valuable to help understand how many people are diagnosed with a condition, and to plan for future healthcare resources and services.
Please complete the survey at the following link.
https://bit.ly/ilfaSOCWEB
The next ILFA Patient Information Day will take place on Saturday 18th November from 11am to 1pm, via Zoom. Join us online to learn more about lung fibrosis and maximising your health. All are welcome. Speakers will include
1. Professor Anthony O’Regan, Respiratory Consultant, University Hospital Galway
2. Olive McCafferty, Respiratory Physiotherapist, Mater Hospital
3. Patricia Davis, Clinical Nurse Specialist, Respiratory Integrated Care, Wicklow
4. Lindsay Brown, Respiratory Advanced Nurse Practitioner, St Vincent’s University Hospital
5. Leah Harrington, Health and Wellbeing Coordinator, Living Well Programme, HSE
Register here
https://us06web.zoom.us/…/reg…/WN_LKJbuDLATxS7Lg-vP8z–Q or call 086 871 5264 or email info@ilfa.ie
The Irish Lung Fibrosis Association (ILFA) seeks to recruit a full time Chief Executive Officer to lead the charity through an exciting development phase and become more sustainable for the future
bit.ly/ILFACEO
@2into3
We’re delighted to unveil the 2023 Christmas Cards from the Irish Lung Fibrosis Association (ILFA). We hope you’ll like the festive designs and will consider supporting ILFA this Christmas. Our cards are made in Ireland and are available to order from ILFA by emailing info@ilfa.ie or calling 086 057 0310
1 pack of 10 cards (2 cards each of 5 designs) costs €6
2 packs cost €10
We would be grateful for any donation towards postage and packing costs if you can affort this.

The Irish Lung Fibrosis Association will host an online “Let’s Talk Cognitive Behavioural Therapy and Psychological Support” session on Monday 6th November 2023 at 2pm. Our guest speaker will be Lynn Fox, Advanced Respiratory Nurse Practitioner at the Mater Misericordiae University Hospital. Register by calling 086 871 5264 or emailing info@ilfa.ie

The Irish Lung Fibrosis Association (ILFA) seeks to recruit a full time Chief Executive Officer (CEO) to lead the charity through an exciting development phase and become more sustainable for the future.

bit.ly/ILFACEO

The Irish Lung Fibrosis Association (ILFA) will host online yoga classes at 11am every Friday for 6-weeks with ILFA Patron and yogi Michael Darragh Macauley. Classes will start on Friday 6th October at 11am.
The classes will consist of breath work and gentle exercise and poses. Classes are free for all ILFA members to join.
Register in advance by emailing info@ilfa.ie or calling 086 871 5264.
We can help you if you need help to join via Zoom.
Namaste!
ILFA will host an online “Let’s talk entitlements” meeting on Tuesday 10 October at 2pm with Helen Ryan, Respiratory Advanced Nurse Practitoner at Galway University Hospital. If you have any questions, they can be submitted in advance of the meeting.
Register to attend by emailing info@ilfa.ie or calling 086 871 5264

ILFA logoIrish Lung Fibrosis Association – Call for Expressions of Interest

The Irish Lung Fibrosis Association (ILFA) is now accepting Expression of Interest applications for the current round of the Health Research Charities Ireland (HRCI) – Health Research Board (HRB) Joint Funding Scheme 2023/2024.

Information relating to the scheme including eligibility criteria can be found in the current HRCI-HRB Instructions to Applicants document which can be accessed here (HRCI-HRB-JFS-2024 Guidance Notes for Applicants)

Opening date for Expressions of Interest: 6th September 2023
Closing date for Expressions of Interest: 29th September 2023
Closing date for submission of full applications: 3rd November 2023

Expressions of Interest should be submitted to info@ilfa.ie

Shortlisted expression of interest applications will be invited to submit a full application. The submission deadline for full applications will be 3rd November 2023.

Budget and project duration: Up to €100,000 (projects with a lower budget are welcome and will be favourably considered) for proposals delivering outcomes at or within 24 months.

The Expression of Interest should include information on

Irish Lung Fibrosis Association

The Irish Lung Fibrosis Association welcomes expressions of interest that are in line with its mission and that deliver impactful outcomes for pulmonary fibrosis with respect to ILFA’s core pillars of research, education, support, and advocacy.

Projects including research on basic science, clinical research, behavioural sciences, epidemiology, treatment pathways, health economics, and patient-reported outcomes relevant to pulmonary fibrosis will be considered.

Visit www.ilfa.ie for details of the Irish Lung Fibrosis Association and its activities.

Irish Lung Fibrosis Association

www.ilfa.ie

Email: info@ilfa.ie
Telephone: 086 871 5264
Social Media: @ILFA_Ireland

Registered charity number 20053437
Company registration number 367940
Charitable exemption number CHY 15462