BUILD 2K: Buddy walking in patients with ILD

Are you or a loved diagnosed with Lung Fibrosis (Interstitial Lung Disease) #ILD, #PulmonaryFibrosis or any related condition? Do you find it hard to motivate yourself to exercise, or find that no-one understands your condition? The Irish Lung Fibrosis Association and University of Limerick’s BUILD 2K Buddy Walking Programme might be for you! The BUILD 2K programme will pair you with a partner, with the aim of facilitating exercise through mutual support, and understanding. More details here: https://www.youtube.com/watch?v=KABgD3DEUuQ&t=5880s
To sign up please contact
ILFA – Email info@ilfa.ie or call 086 871 5264 or
Professor Roisins Cahalan – Email: Roisin.Cahalan@ul.ie or
Ciarán Purcell – Email: Ciarán.Purcell@ul.ie
The 2024 AIB Community €1 Million Fund is now open for nominations and the Irish Lung Fibrosis Association needs your help please.
Go to the website https://aib.ie/personal-forms/community-fund to complete an online form.
Nominate the Irish Lung Fibrosis Association
ILFA’s Charity Number is 20053437
Select “Greater Dublin” region with a social theme of “Other” when you’re filling out the form.
Please ask your family and friends to vote for ILFA too. Thank you!
The Irish Lung Fibrosis Association (ILFA) is delighted to partner with the CHO DNCC (Community Health Organisation Dublin North City and County) to deliver the HSE Living Well Programme for lung fibrosis patients from Tuesday, 28th May – Tuesday, 9th July. The Living Well programme supports you to develop and enhance the skills that help you to live well with a long-term health condition.
The programme is free of charge and takes place online in the evening. It will run over 7 weeks. The first week is 1 hour duration and the following weeks are 2.5 hours duration. For more information about the course, visit www.hse.ie/LivingWell
To register to take part, please email info@ilfa.ie call 086 871 5264
or contact Louise Potter, Living Well Coordinator
Email: LivingWellDNCC@hse.ie
Phone: 01 897 6171
The Irish Lung Fibrosis Association (ILFA) is delighted to offer educational bursaries to respiratory healthcare professionals working with lung fibrosis patients to study Cognitive Behavioural Therapy (CBT) online.
The next course will commence at the end of May 2024.
Healthcare professionals can contact ILFA by emailing info@ilfa.ie or calling 086 871 5264 for an application form.
Closing date 30th April.

The next ILFA Patient Information Day will take place online on Saturday 13th April from 11am until 1.30pm via the Zoom online platform.

We hope you can join us to learn more about pulmonary fibrosis from experts in the field.

Speakers will include
– Dr Eoin Judge, Respiratory Consultant
– Helen Mulryan, Advance Nurse Practitioner, Respiratory
– Louisa Power, HSE Medication Safety Pharmacist
– Sinead Coyle, Senior Physiotherapist
– Professor Killian Hurley, Respiratory Consultant, and Dr Aoife Carolan, Specialist Registrar
– Roisin Cahalan, Associate Professor Respiratory and Cardiovascular Physiotherapy

Please call 086 871 5264 or email info@ilfa.ie to register for this free online event. You can also register directly via the Zoom link below

The Irish Lung Fibrosis Association (ILFA) is delighted to offer educational bursaries to respiratory healthcare professionals working with lung fibrosis patients to study Cognitive Behavioural Therapy (CBT) online.
The next course will commence at the end of May 2024.
Healthcare professionals can contact ILFA by emailing info@ilfa.ie or calling 086 871 5264 for an application form.
Closing date 30th April.
Will you join us from your location to take part in the 2000 Steps Extra Challenge for the Irish Lung Fibrosis Association on 1st April? Why not ask your friends and family to lend support, walk an extra mile (approximately 2000 steps) for a worthy cause, and make a donation in lieu of Easter eggs!
Email info@ilfa.ie or call 086 871 5264 or 086 057 0310 for a special fundraising pack. Remember to send us in a photo if you would like to share your achievement! Thank you for your support!
You can donate here https://www.facebook.com/donate/1106508167162056/ or via https://ilfa.ie/donate/

ILFA Newsletter_Spring 2024

The Irish Lung Fibrosis Association will host an online Patient Support Group meeting on Tuesday 26th March at 2pm via Zoom. All are welcome to this online meeting where you will have the chance to speak with your peers. Please email info@ilfa.ie or call 086 871 5264 to register. We can give you advice on how to use Zoom if you need any help to get started.

The Irish Lung Fibrosis Association (ILFA) is delighted to partner with the CHO DNCC (Community Health Organisation Dublin North City and County) to deliver the HSE Living Well Programme for lung fibrosis patients from Tuesday, 28th May – Tuesday, 9th July. The Living Well programme supports you to develop and enhance the skills that help you to live well with a long-term health condition.
The programme is free of charge and takes place online in the evening. It will run over 7 weeks. The first week is 1 hour duration and the following weeks are 2.5 hours duration. For more information about the course, visit www.hse.ie/LivingWell
To register to take part, please email info@ilfa.ie call 086 871 5264
or contact Louise Potter, Living Well Coordinator
Email: LivingWellDNCC@hse.ie
Phone: 01 897 6171