Human Tissue Bill 2023

Debate on the second stage of the Human Tissue Bill (including the Opt-Out Organ Donation Consent System) is scheduled to take place in Dail Eireann today, Tuesday 24th January.

ILFA supports the introduction of an Opt-Out Organ Donation System and is a signatory on the Briefing Paper from members of the Irish Donor Network (see link below).

Briefing Paper Human Tissue Bill IDN

 

The Irish Lung Fibrosis Association will host an online support group meeting on Wednesday 1st February at 2pm using the Zoom platform.

 

All are welcome.

We hope you will join us for some valuable introductions, discussions and peer support.

Email info@ilfa.ie or call 086 871 5264 to register.

The Irish Lung Fibrosis Association in collaboration with the Irish Thoracic Society is pleased to welcome Professor Michael Kreuter, Director of the Center for Interstitial & Rare Lung Diseases, Heidelberg University Hospital to deliver the Fergus Goodbody Lecture to healthcare professionals online on 10/2/23

Healthcare professionals can register via the Irish Thoracic Society.

The Human Tissue Bill has now been published and is available on the Oireachtas website;
https://oireachtas.ie/en/bills/bill/2022/121/
Statement from the Irish Lung Fibrosis Association.
“The Irish Lung Fibrosis Association (ILFA) warmly welcomes the publication of the Human Tissue BIll especially the provision for the introduction of a soft-opt organ donation consent system. ILFA has campaigned with members of the Irish Donor Network for an opt-out organ donation system and we look forward to the benefits this legislation will bring with time. We urge the government, HSE and Department of Health to commit adequate resources and investment in infrastructure and personnel to ensure that organ donation and transplantation services in Ireland are maximised to their full potential.”

Join ILFA for an online Festive Dance Class on Tuesday December 20th at 4pm with choreographer Tracey Barnes and members of the Dancing for IPF Team. All are welcome.

Don’t forget to wear your Christmas jumper and hat!

Register in advance by emailing info@ilfa.ie or calling 086 871 5264

The Irish Lug Fibrosis Association (ILFA) is delighted to announce a new 6-week series of online yoga classes with Michael Darragh Macauley.
The classes will start on Friday 11th November at 10.30am via Zoom.
Please register in advance to join the class by emailing info@ilfa.ie or calling 086 871 5264
The class is free to all members registered with ILFA.
Namaste!
“Let’s Talk Oxygen for Pulmonary Fibrosis” with Lindsay Browne, Respiratory Advanced Nurse Practitioner at St Vincent’s University Hospital, will take place on Wednesday 9th November 2022 @ 4pm via Zoom.
Oxygen tankPlease register in advance by calling 086 871 5264 or emailing info@ilfa.ie
Questions can be submitted in advance via email.
We’re delighted to unveil the 2022 ILFA Christmas Cards.Selection of Christmas card designs
We hope you’ll like the festive designs and will consider supporting ILFA this Christmas.
Our cards are made in Ireland and are available to order from ILFA by calling 086 871 5264 or emailing info@ilfa.ie
1 pack of 10 cards (2 cards each of 5 designs) costs €6
2 packs of cards cost €10

ILFA Patient Information Day

The next ILFA Patient Information Day will take place virtually on Saturday 5 November 2022 from 11am to 1pm.
Our speakers include
Dr Liam Chawke – Respiratory Consultant, Kerry University Hospital
Lindsay Browne – Respiratory Advanced Nurse Practitioner, St Vincent’s University Hospital
Eimear Bell – Respiratory Physiotherapist
Carita Bramhill – PHD Researcher, Trinity College Dublin
Register via the Zoom link below or call ILFA on 086 871 5264 or email info@ilfa.ie.
https://us06web.zoom.us/webinar/register/WN_PX7t6VjWSl2Vk63TxUIxWw

 

Patients and carers are invited to ILFA’s online discussion entitled “Let’s Talk Unmet Needs for Lung Fibrosis

Let’s talkPatients” with team members from The BioInnovate Program based in University of Galway. The program takes a ‘Needs Led Innovation’ approach (process) to create novel healthcare solutions to previously unmet and unrecognised problems.

 
The 2022 Respiratory and Anaesthesia Team come from clinical, engineering and business backgrounds. The team is keen to speak to patients on the challenges of their condition. The team hopes to identify a broad range of needs which could have new improved solutions for patients and users developed.
 
Join us online on Monday 24th October from 4-5pm to discuss your specific challenges or unmet needs from diagnosis, treatment or day to day living with your condition. Do you face
-Challenges with medication?
-Oxygen support?
-Challenging symptoms?
-Specific support areas / needs – things you find that help but are hard to get
 
If you would like to take part, please register in advance by emailing support@ilfa.ie