Thank you to everyone who purchased Christmas cards from Irish Lung Fibrosis Association (ILFA) in 2023.
Our Christmas cards are all sold and we will not be getting more stock at this time.
Thank you for your support.
If you would like to make a donation to the Irish Lung Fibrosis Association this Christmas, please visit https://ilfa.ie/donate/
A national Interstitial Lung Disease (ILD) Registry is currently proposed to collect information about the number of people diagnosed with lung fibrosis in Ireland. ILFA is seeking the input of patients and healthcare professionals to identify the priorities that should be included in this registry. The purpose of this survey is to help guide those developing the registry to make sure that it meets the needs of all stakeholders.
Patient registries are designed to collect anonymous, relevant, and appropriate information about people diagnosed with specific health conditions. Registry information is valuable to help understand how many people are diagnosed with a condition, and to plan for future healthcare resources and services.
The next ILFA Patient Information Day will take place on Saturday 18th November from 11am to 1pm, via Zoom. Join us online to learn more about lung fibrosis and maximising your health. All are welcome. Speakers will include
1. Professor Anthony O’Regan, Respiratory Consultant, University Hospital Galway
2. Olive McCafferty, Respiratory Physiotherapist, Mater Hospital
3. Patricia Davis, Clinical Nurse Specialist, Respiratory Integrated Care, Wicklow
4. Lindsay Brown, Respiratory Advanced Nurse Practitioner, St Vincent’s University Hospital
5. Leah Harrington, Health and Wellbeing Coordinator, Living Well Programme, HSE
The Irish Lung Fibrosis Association (ILFA) seeks to recruit a full time Chief Executive Officer to lead the charity through an exciting development phase and become more sustainable for the future https://bit.ly/ILFACEO
We’re delighted to unveil the 2023 Christmas Cards from the Irish Lung Fibrosis Association (ILFA). We hope you’ll like the festive designs and will consider supporting ILFA this Christmas. Our cards are made in Ireland and are available to order from ILFA by emailing info@ilfa.ie or calling 086 057 0310
1 pack of 10 cards (2 cards each of 5 designs) costs €6 2 packs cost €10
We would be grateful for any donation towards postage and packing costs if you can affort this.
The Irish Lung Fibrosis Association will host an online “Let’s Talk Cognitive Behavioural Therapy and Psychological Support” session on Monday 6th November 2023 at 2pm. Our guest speaker will be Lynn Fox, Advanced Respiratory Nurse Practitioner at the Mater Misericordiae University Hospital. Register by calling 086 871 5264 or emailing info@ilfa.ie
The Irish Lung Fibrosis Association (ILFA) seeks to recruit a full time Chief Executive Officer (CEO) to lead the charity through an exciting development phase and become more sustainable for the future.
For more information, please visit LinkedIn via https://bit.ly/ILFACEO
The Irish Lung Fibrosis Association (ILFA) will host online yoga classes at 11am every Friday for 6-weeks with ILFA Patron and yogi Michael Darragh Macauley. Classes will start on Friday 6th October at 11am.
The classes will consist of breath work and gentle exercise and poses. Classes are free for all ILFA members to join.
Register in advance by emailing info@ilfa.ie or calling 086 871 5264.
We can help you if you need help to join via Zoom.
Namaste!
ILFA will host an online “Let’s talk entitlements” meeting on Tuesday 10 October at 2pm with Helen Ryan, Respiratory Advanced Nurse Practitoner at Galway University Hospital. If you have any questions, they can be submitted in advance of the meeting.
Register to attend by emailing info@ilfa.ie or calling 086 871 5264
Irish Lung Fibrosis Association – Call for Expressions of Interest
The Irish Lung Fibrosis Association (ILFA) is now accepting Expression of Interest applications for the current round of the Health Research Charities Ireland (HRCI) – Health Research Board (HRB) Joint Funding Scheme 2023/2024.
Opening date for Expressions of Interest: 6th September 2023
Closing date for Expressions of Interest: 29th September 2023
Closing date for submission of full applications: 3rd November 2023
Expressions of Interest should be submitted to info@ilfa.ie
Shortlisted expression of interest applications will be invited to submit a full application. The submission deadline for full applications will be 3rd November 2023.
Budget and project duration: Up to €100,000 (projects with a lower budget are welcome and will be favourably considered) for proposals delivering outcomes at or within 24 months.
The Expression of Interest should include information on
Applicant details
Project summary
Title (maximum 20 words)
Expected duration including calendar dates (month-year): planned start date 0f active project or data acquisition, planned end date of active phase or data acquisition, planned date of final report including completion of statistical analysis, if any
Background (maximum 100 words)
Relevance to mission of ILFA (maximum 100 words)
Planned patient and public involvement (maximim 100 words)
Description of proposed research project (maximum 200 words, plus 2 diagrams/tables)
Expected budget including VAT – equipment, personnel, services required (e.g. randomisation), other (including conference participation)
Irish Lung Fibrosis Association
The Irish Lung Fibrosis Association welcomes expressions of interest that are in line with its mission and that deliver impactful outcomes for pulmonary fibrosis with respect to ILFA’s core pillars of research, education, support, and advocacy.
Projects including research on basic science, clinical research, behavioural sciences, epidemiology, treatment pathways, health economics, and patient-reported outcomes relevant to pulmonary fibrosis will be considered.
Visit www.ilfa.ie for details of the Irish Lung Fibrosis Association and its activities.
LKJbuDLATxS7Lg-vP8z–Q or call 086 871 5264 or email info@ilfa.ie
2 packs cost €10
Irish Lung Fibrosis Association – Call for Expressions of Interest