ILFA’s 2000 Steps Extra Challenge on Easter Monday

ILFA’s 2000 Steps Extra Challenge will take place on Easter Monday 10th April.
We’re asking everyone to go for a walk or run from your home and commit to take 2000 steps extra (one mile more) to help raise awareness of lung fibrosis and funds for ILFA.

If you would like to take part in the ILFA 2000 Steps Extra Challenge on Easter Monday, you can register by emailing info@ilfa.ie for your neck warmer and poster.

Remember to send us a photo of your virtual walk so we can share images and raise awareness.

You can donate securely online to the 2000 Steps Extra Challenge via the following links

The Dublin Pulmonary Fibrosis Support Group will meet again face-to-face after a long break due to the pandemic. The first meeting will take place on Tuesday 4th April from 11am-12pn at the Community Centre, Whitefriar Street Church, Aungier Street, Dublin2.
The time and date of subsequent meetings is to be confirmed. All are welcome.
Contact Matt on 086 244 8682 for more information.

The latest ILFA newsletter is now available to read online
Click here to view

ILFANewsletter_Spring2023_FINAL_loresFront page of the ILFA Spring Newsletter 2023

ILFA Patient Information Day

The next Patient Information Day from the Irish Lung Fibrosis Association will take place on 25th March at 11am via Zoom. We hope you will join us to learn more about lung fibrosis. All are welcome.
Register in advance via the link http://bit.ly/41Rnewn or alternatively email info@ilfa.ie or call 086 871 5264
Our speakers will include
• Professor Killian Hurley, Respiratory Consultant at Beaumont Hospital
• Donna Langan, Respiratory Advanced Nurse Practitioner at Galway University Hospital
• Grace O’Sullivan, Respiratory Clinical Nurse Specialist at Cork University Hospital
• Dr Roisin Cahalan, Lecturer in Respiratory and Cardiovascular Physiotherapy in the School of Allied Health in the Faculty of Education and Health Sciences at University of Limerick
• Dr Anne Marie Russell, Senior Lecturer at University of Exeter Medical School.

Sandra Murphy, Clinical Specialist Dietitian at the Mater Misericordiae Hospital, will take part in ILFA’s “Let’s Talk Nutrition for Lung Fibrosis” on Friday 31 March 2023 @ 12pm via Zoom. Please contact ILFA by emailing info@ilfa.ie or calling 086 871 5264 to register to attend. Questions can be submitted in advance by emailing info@ilfa.ie.

Lynn Fox, Respiratory Advance Nurse Practitioner at the Mater Miserericordiae University Hospital, will take part in ILFA’s “Let’s Talk Medication” session on Monday 27th February at 2pm. All are welcome to this online event that will take place via Zoom. Please register at info@ilfa.ie or call 086 871 5264.
Questions on medication can be submitted in advance.

ILFA’s online, award winning exercise classes for lung fibrosis patients take place every week and are free of charge to members.
Classes are led by Eimear Bell, respiratory physiotherapist and take place on Monday, Wednesday and Thursday via Zoom.
Email info@ilfa.ie or call 086 871 5264 to join.

ILFA’s next Patient and Public Involvement Advisory Group Meeting will take place on Thursday 25th February at 5pm. Thank you to the patients, carers, scientists, researchers and healthcare professionals who participate in this group. A link to join the online meeting will be sent to all members in advance of the meeting.

Debate on the second stage of the Human Tissue Bill (including the Opt-Out Organ Donation Consent System) is scheduled to take place in Dail Eireann today, Tuesday 24th January.

ILFA supports the introduction of an Opt-Out Organ Donation System and is a signatory on the Briefing Paper from members of the Irish Donor Network (see link below).

Briefing Paper Human Tissue Bill IDN