Aungier Street, Dublin 2 on Saturday 15th October at 4pm. We are delighted to return to an in-person event and look forward to welcoming our guests. The service may also be live-streamed (to be confirmed).
We hope you will join us in Dublin for this uplifting community event.
Join Eimear Bell, Respiratory physiotherapist, for an online session entitled “Let’s Talk Breathing Techniques” for pulmonary fibrosis patients.
Eimear will give a presentation on breathing techniques that will be followed by a Questions and Answers session.
Please submit any questions you may have in advance and Eimear will do her best to answer them in the allotted time. The meeting will take place via Zoom and we can provide you with assistance if necessary.
Please email info@ilfa.ie or call 086 871 5264 or 086 057 0310 to register to attend.
ILFA_Newsletter_Summer2022_website
Patient and public involvement (PPI) in research is defined by the National Institute for Health Research as “Research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them”.
Public, patient, and carer Involvement in research is becoming increasingly important in research planning, development, and design, and is now considered best practice. Actively involving patients and the public in research activities ensures that the voice of patients and other interested parties is included to influence quality research. This results in research activities that are enhanced, better designed, with clearer and more relevant outcomes, and a faster uptake of new evidence.
ILFA is committed to PPI to ensure patients’ and carers’ perspectives and priorities influence our aims/mission, values, activities, advocacy, and research. This year ILFA would like to set up a PPI Research Advisory Group to inform our research activities, enhance collaborations with researchers and support and influence research relating to lung fibrosis. Ideally, we would like to recruit 15 members.
Role of the PPI Advisory Group
The role of the PPI advisory group is to contribute their perspectives to ILFA’s research activities, to engage with research proposals. meaningfully and actively collaborate in the governance, priority setting and conduct of research, as well as in summarising, distributing, sharing results and knowledge.
Responsibilities
ILFA has prepared Terms of Reference for the PPI Advisory Group that are available on request. If you are interested in joining the PPI Advisory Group, please contact ILFA by the end of June 2022.
Email info@ilfa.ie or call 086 871 5264
ILFA is delighted to announce a new, free yoga course for lung fibrosis patients and carers delivered by Michael Darragh Macauley, who is a qualified yogi.
The 8-week programme will take place every Wednesday at 10.30am starting on 22nd June.
The classes will include breathing and stretching exercises, physical moves and meditations carried out in standing and seated positions. Time will be allocated at the end of each session for peer support and a chat.
This exercise initiative is supported with a much-valued grant from Age & Opportunity and Sports Ireland.
To register to attend the course, please email info@ilfa.ie or call 086 871 5264 by Monday 20th June 2022.
ILFA will host an online support group meeting on Wednesday 8th June at 3pm via Zoom.
We will use breakout rooms for people to meet in small groups & have a friendly chat over a cuppa.
We hope you can join us.
Please email info@ilfa.ie or call 086 871 5264 to register in advance.