Online Pulmonary Rehab class

ILFA’s national online pulmonary rehabilitation class will not take place on Monday 26 October as it is a bank holiday. Online classes will start again on Monday 2 November and will take place every Monday at 11am.
The classes take place online using Zoom and you will need a tablet device, a smart phone or a laptop/computer. You will receive an email from ILFA with instructions on how to join – you simply have to click the link provided to join the class. Please contact Gemma on 086 871 5264 or email info@ilfa.ie to register to join future classes.
In the meantime, you can still exercise from the comfort of your own home with this video recorded by physiotherapy students at University Hospital Limerick https://www.youtube.com/watch?v=FZIwVdmtK1w
Usually in October we have the ILFA Ecumenical Service of Prayer and Reflection to look forward to and we come together as a community. Sadly this year, the service will not take place.
On Saturday 24th October, ILFA would like to invite you to light a candle at 6pm in support of patients and their families, and also to remember loved ones with lung fibrosis who have passed away.
The time of 6pm (18.00hr) is symbolic as ILFA was founded at this time of year 18 years ago. We hope you will join us. Please share a photo of your candle via our Facebook page or email info@ilfa.ie you would like to.
“Let’s Talk … Planning for the Future” – an online education session to discuss practical and legal aspects of planning for the future for lung fibrosis patients will take place on Tuesday 3rd November at 4pm.
Rebecca Lloyd from the Irish Hospice Foundation will join the meeting and answer your questions.
Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie

Let’s Talk Resilience – an online education session to discuss resilience and coping strategies for lung fibrosis patients will take place on Tuesday 6th October at 11am.

Dr Jennifer Wilson O’Raghallaigh, Clinical Psychologist at Beaumont Hospital, Dublin will join the meeting and answer your questions.

Please register and send in your questions in advance to Gemma by calling 086 871 5264 or emailing info@ilfa.ie

 

The Kerry Gold Friendship Classis will take place in Beaufort Golf Club in Kerry on Saturday 3rd October with proceeds going to ILFA and the Kerry Hospice Foundation.

All public health measures will be observed.

Huge thanks to Gerry Redican and JP O’Sulllivan of the Kerry IPF SUpport Group for organising this much appreciated fundraiser for ILFA.

The Covid 19 pandemic has transformed the way medical consultations take place and telephone consultations and video calls are becoming more common.

Remote healthcare offers many advantages as you can speak with a healthcare professional from the comfort and safety of your own home and travel is not required. Family members and carers can be included in the consultation if you wish.

However sometimes, your healthcare team will need a face-to-face consultation to assess your condition fully and sometimes the technology used can be tricky to master. Always ask for help if you need assistance with such consultations.

Congratulations to the recipients of the ILFA educational bursary whi will undertake Cognitive Behaviour Therapy (CBT) training.
Bursaries have been awarded to the following healthcare professionals;
– Paula Ryan, Advanced Nurse Practitioner, University Hospital Limerick
– Julie Goss, Harolds Cross Hospice, Dublin
– Deirdre Garvin, Respiratory Nurse Specialist, Mayo University Hospital, Mayo
– Christina Tobin, Respiratory Physiotherapist, Mallow General Hospital, Cork
– Antoinette Doherty, Clinical Nurse Specialist Respiratory, Letterkenny Hospital, Donegal,
– Catherine McGeoghegan, Respiratory Clinical Nurse Specialist, Beaumont Hospital, Dublin
– Sarah Cuneen, Senior Physiotherapist, Tallaght Hospital Dublin
– Carita Bramhill, Dublin
– Niamh Julian, Respiratory Physiotherapist, University Hospital Limerick
– Lynn Fox, Advanced Nurse Practitioner, Mater University Hospital, Dublin

ILFA is pleased to announce that registration for the Fergus Goodbody Memorial Lecture on Idiopathic Pulmonary Fibrois in collaboration with the Royal College of Physicians of Ireland is now open for healthcare professionals. The online Masterclass will take place online on 23rd September at 5.30pm.

The invited speakers are;
– Dr Nazia Chaudhuri, Consultant Respiratory Physician, Clinical Lead in ILD, Deputy Clinical Director Respiratory, Manchester University NHS Foundation Trust; Honorary Senior Lecturer, University of Manchester, who will speak on “Management of medication”
– Dr Maria Molina Molina, IDIBELL Bellvitge Biomedical Research Institute, Area Inflammatory, Chronic and Degenerative Diseases, who will speak on “Familial IPF”
– Dr Simon Walsh, Consultant Radiologist, NIHR Clinician Scientist, National Heart and Lung Institute, Imperial College, London, who will speak on “Radiological update on Interstitial Lung Disease”

Please register via the link

https://courses.rcpi.ie/product?catalog=Masterclass-Fergus-Goodbody-Lecture2020

Let’s Talk Breathlessness – an online session to discuss managing breathlessness for lung fibrosis patients will take place on Monday 7th September at 3pm.

Debbie Gibbons, physiotherapist, St Francis Hospice, Dublin will join the meeting and answer your questions.

Please register and send your questions in advance by calling Gemma on 086 871 5264 or emailing info@ilfa.ie

Pulmonary rehab class: Every Monday a free online pulmonary exercise class for lung fibrosis patients will take place at 11am via Zoom.

The class will be delivered by Niamh Julian (Senior Respiratory Physiotherapist) and Paula Ryan (Advanced Nurse Practitioner) at Limerick University Hospital.

To register to take part, please call Gemma on 086 871 5264 or email info@ilfa.ie