HSE Living Well Programme

The Irish Lung Fibrosis Association (ILFA) is delighted to partner with the CHO DNCC (Community Health Organisation Dublin North City and County) to deliver the HSE Living Well Programme for lung fibrosis patients from Tuesday, 28th May – Tuesday, 9th July. The Living Well programme supports you to develop and enhance the skills that help you to live well with a long-term health condition.
The programme is free of charge and takes place online in the evening. It will run over 7 weeks. The first week is 1 hour duration and the following weeks are 2.5 hours duration. For more information about the course, visit www.hse.ie/LivingWell
To register to take part, please email info@ilfa.ie call 086 871 5264
or contact Louise Potter, Living Well Coordinator
Email: LivingWellDNCC@hse.ie
Phone: 01 897 6171
The Irish Lung Fibrosis Association (ILFA) is delighted to offer educational bursaries to respiratory healthcare professionals working with lung fibrosis patients to study Cognitive Behavioural Therapy (CBT) online.
The next course will commence at the end of May 2024.
Healthcare professionals can contact ILFA by emailing info@ilfa.ie or calling 086 871 5264 for an application form.
Closing date 30th April.

The next ILFA Patient Information Day will take place online on Saturday 13th April from 11am until 1.30pm via the Zoom online platform.

We hope you can join us to learn more about pulmonary fibrosis from experts in the field.

Speakers will include
– Dr Eoin Judge, Respiratory Consultant
– Helen Mulryan, Advance Nurse Practitioner, Respiratory
– Louisa Power, HSE Medication Safety Pharmacist
– Sinead Coyle, Senior Physiotherapist
– Professor Killian Hurley, Respiratory Consultant, and Dr Aoife Carolan, Specialist Registrar
– Roisin Cahalan, Associate Professor Respiratory and Cardiovascular Physiotherapy

Please call 086 871 5264 or email info@ilfa.ie to register for this free online event. You can also register directly via the Zoom link below

https://us06web.zoom.us/…/reg…/WN_lKRiUis4T4S6Ler1B156gQ
The Irish Lung Fibrosis Association (ILFA) is delighted to offer educational bursaries to respiratory healthcare professionals working with lung fibrosis patients to study Cognitive Behavioural Therapy (CBT) online.
The next course will commence at the end of May 2024.
Healthcare professionals can contact ILFA by emailing info@ilfa.ie or calling 086 871 5264 for an application form.
Closing date 30th April.
Will you join us from your location to take part in the 2000 Steps Extra Challenge for the Irish Lung Fibrosis Association on 1st April? Why not ask your friends and family to lend support, walk an extra mile (approximately 2000 steps) for a worthy cause, and make a donation in lieu of Easter eggs!
Email info@ilfa.ie or call 086 871 5264 or 086 057 0310 for a special fundraising pack. Remember to send us in a photo if you would like to share your achievement! Thank you for your support!
You can donate here https://www.facebook.com/donate/1106508167162056/ or via https://ilfa.ie/donate/

ILFA Newsletter_Spring 2024

The Irish Lung Fibrosis Association will host an online Patient Support Group meeting on Tuesday 26th March at 2pm via Zoom. All are welcome to this online meeting where you will have the chance to speak with your peers. Please email info@ilfa.ie or call 086 871 5264 to register. We can give you advice on how to use Zoom if you need any help to get started.

The Irish Lung Fibrosis Association (ILFA) is delighted to partner with the CHO DNCC (Community Health Organisation Dublin North City and County) to deliver the HSE Living Well Programme for lung fibrosis patients from Tuesday, 28th May – Tuesday, 9th July. The Living Well programme supports you to develop and enhance the skills that help you to live well with a long-term health condition.
The programme is free of charge and takes place online in the evening. It will run over 7 weeks. The first week is 1 hour duration and the following weeks are 2.5 hours duration. For more information about the course, visit www.hse.ie/LivingWell
To register to take part, please email info@ilfa.ie call 086 871 5264
or contact Louise Potter, Living Well Coordinator
Email: LivingWellDNCC@hse.ie
Phone: 01 897 6171
A computer screen sidlaying the word "webinar"The next ILFA Patient Information Day will take place online on Saturday 13th April from 11am until 1.30pm via the Zoom online platform.

We hope you can join us to learn more about pulmonary fibrosis from experts in the field.

Please call 086 871 5264 or email info@ilfa.ie to register for this free online event. You can also register directly via the Zoom link below

https://us06web.zoom.us/…/reg…/WN_lKRiUis4T4S6Ler1B156gQ

If you have a diagnosis of pulmonary fibrosis and have at least one relative with pulmonary fibrosis, Professor Kilian Hurley and Dr Aoife Carolan at Beaumont Hospital would like you totake part in their research study called the PRECISE-PF Study.

The research team is looking to improve knowledge of how pulmonary fibrosis behaves in patients with a family history of pulmonary fibrosis in comparison to those who do not have a family history. They are also looking to find out more about the genetics of familial pulmonary fibrosis in Ireland.

Please see the flyer for more information on how to get involved.