HSE Living Well Programme for Lung Fibrosis Patients
The Irish Lung Fibrosis Association (ILFA) is delighted to partner with the CHO DNCC (Community Health Organisation Dublin North City and County) to deliver the HSE Living Well Programme for lung fibrosis patients from Tuesday, 28th May – Tuesday, 9th July. The Living Well programme supports you to develop and enhance the skills that help you to live well with a long-term health condition.
The programme is free of charge and takes place online in the evening. It will run over 7 weeks. The first week is 1 hour duration and the following weeks are 2.5 hours duration. For more information about the course, visit www.hse.ie/LivingWell
To register to take part, please email info@ilfa.ie call 086 871 5264
or contact Louise Potter, Living Well Coordinator
Email: LivingWellDNCC@hse.ie
Phone: 01 897 6171
The next ILFA Patient Information Day will take place online on Saturday 13th April from 11am until 1.30pm via the Zoom online platform.
We hope you can join us to learn more about pulmonary fibrosis from experts in the field.
Please call 086 871 5264 or email info@ilfa.ie to register for this free online event. You can also register directly via the Zoom link below
If you have a diagnosis of pulmonary fibrosis and have at least one relative with pulmonary fibrosis, Professor Kilian Hurley and Dr Aoife Carolan at Beaumont Hospital would like you totake part in their research study called the PRECISE-PF Study.
The research team is looking to improve knowledge of how pulmonary fibrosis behaves in patients with a family history of pulmonary fibrosis in comparison to those who do not have a family history. They are also looking to find out more about the genetics of familial pulmonary fibrosis in Ireland.
Please see the flyer for more information on how to get involved.
ILFA is delighted to announce that Dr Roisin Cahalan, Respiratory and Cardiovascular Physiotherapy, Faculty of Education and Health Sciences at University of Limerick has been awarded “New Foundation” Funding from the Irish Research Council for a project entitled “BUILD 2K: Buddy Walking In Fibrotic Lung Disease – Developing the 2000 Steps Initiative (ILFA/ 2000 Step Programme)”
If you have used the ILFA 2000 Step Walking Programme recently, we are asking you to participate in a survey that will help the future development of the 2000 Steps Programme and other projects. Based on the findings from the survey (link below), a focus group will be set up to further develop this research project.
See link below asking you for consent to proceed or not:
If you have any questions, you can contact Roisin Cahalan or Ciarán Purcell at the email addresses listed below at any time before, during or following the study. You can ask any questions you might have when you fill in the questionnaire, or during the physical screening.
Contact name and email details of Research Investigators
Name: Roisin Cahalan Email: Roisin.Cahalan@ul.ie
Name: Ciarán Purcell Email: Ciarán/Purcell@ul.ie
The Irish Lung Fibrosis Association (ILFA) relies on fundraising and donations to help us support lung fibrosis patients, their families, and the healthcare professionals caring for them. If you can help us and are looking for some fun and inspiring ideas, click the link below to read ILFA’s A to Z of fundraising ideas!
If there’s something here that appeals to you, please contact ILFA and we’ll be delighted to work with you and help you get started. Call 086 871 5264 or 086 057 0310, or email info@ilfa.ie
Thank you for your support!
Thank you to everyone who supported the work of the Irish Lung Fibrosis Association in 2023. ILFA relies on donations and fundraising to support our work providing research, education and support. If you would like to donate to a good cause this Christmas and help make a difference, we have a range of ways to help make the donation process secure and easy. https://ilfa.ie/donate/
Thank you and Happy Christmas!
A special Christmas yoga class for lung fibrosis patients, carers and healthcare professionals with ILFA’s Patron Michael Darragh MacAuley will take place on Friday 15th December at 11am.
Wear your Christmas jumper and Santa hat, and join us for some festive fun and welcome zen!
We can’t wait!!!
Namaste!
Email info@ilfa.ie or call 086 871 5264 to register
Thank you to everyone who purchased Christmas cards from Irish Lung Fibrosis Association (ILFA) in 2023.
Our Christmas cards are all sold and we will not be getting more stock at this time.
Thank you for your support.
If you would like to make a donation to the Irish Lung Fibrosis Association this Christmas, please visit https://ilfa.ie/donate/
If you would like to make a donation to the Irish Lung Fibrosis Association this Christmas, please visit https://ilfa.ie/donate/
ILFA Survey !
A national Interstitial Lung Disease (ILD) Registry is currently proposed to collect information about the number of people diagnosed with lung fibrosis in Ireland. ILFA is seeking the input of patients and healthcare professionals to identify the priorities that should be included in this registry. The purpose of this survey is to help guide those developing the registry to make sure that it meets the needs of all stakeholders.
Patient registries are designed to collect anonymous, relevant, and appropriate information about people diagnosed with specific health conditions. Registry information is valuable to help understand how many people are diagnosed with a condition, and to plan for future healthcare resources and services.
Please complete the survey at the following link.
The next ILFA Patient Information Day will take place on Saturday 18th November from 11am to 1pm, via Zoom. Join us online to learn more about lung fibrosis and maximising your health. All are welcome. Speakers will include
1. Professor Anthony O’Regan, Respiratory Consultant, University Hospital Galway
2. Olive McCafferty, Respiratory Physiotherapist, Mater Hospital
3. Patricia Davis, Clinical Nurse Specialist, Respiratory Integrated Care, Wicklow
4. Lindsay Brown, Respiratory Advanced Nurse Practitioner, St Vincent’s University Hospital
5. Leah Harrington, Health and Wellbeing Coordinator, Living Well Programme, HSE
Register here
https://us06web.zoom.us/…/reg…/WN_
LKJbuDLATxS7Lg-vP8z–Q or call 086 871 5264 or email info@ilfa.ie
LKJbuDLATxS7Lg-vP8z–Q or call 086 871 5264 or email info@ilfa.ie