BUILD 2K: Buddy Walking In Fibrotic Lung Disease
ILFA is delighted to announce that Dr Roisin Cahalan, Respiratory and Cardiovascular Physiotherapy, Faculty of Education and Health Sciences at University of Limerick has been awarded “New Foundation” Funding from the Irish Research Council for a project entitled “BUILD 2K: Buddy Walking In Fibrotic Lung Disease – Developing the 2000 Steps Initiative (ILFA/ 2000 Step Programme)”
If you have used the ILFA 2000 Step Walking Programme recently, we are asking you to participate in a survey that will help the future development of the 2000 Steps Programme and other projects. Based on the findings from the survey (link below), a focus group will be set up to further develop this research project.
See link below asking you for consent to proceed or not:
If you have any questions, you can contact Roisin Cahalan or Ciarán Purcell at the email addresses listed below at any time before, during or following the study. You can ask any questions you might have when you fill in the questionnaire, or during the physical screening.
Contact name and email details of Research Investigators
Name: Roisin Cahalan Email: Roisin.Cahalan@ul.ie
Name: Ciarán Purcell Email: Ciarán/Purcell@ul.ie
The Irish Lung Fibrosis Association (ILFA) relies on fundraising and donations to help us support lung fibrosis patients, their families, and the healthcare professionals caring for them. If you can help us and are looking for some fun and inspiring ideas, click the link below to read ILFA’s A to Z of fundraising ideas!
If there’s something here that appeals to you, please contact ILFA and we’ll be delighted to work with you and help you get started. Call 086 871 5264 or 086 057 0310, or email info@ilfa.ie
Thank you for your support!
Thank you to everyone who supported the work of the Irish Lung Fibrosis Association in 2023. ILFA relies on donations and fundraising to support our work providing research, education and support. If you would like to donate to a good cause this Christmas and help make a difference, we have a range of ways to help make the donation process secure and easy. https://ilfa.ie/donate/
Thank you and Happy Christmas!
A special Christmas yoga class for lung fibrosis patients, carers and healthcare professionals with ILFA’s Patron Michael Darragh MacAuley will take place on Friday 15th December at 11am.
Wear your Christmas jumper and Santa hat, and join us for some festive fun and welcome zen!
We can’t wait!!!
Namaste!
Email info@ilfa.ie or call 086 871 5264 to register
Thank you to everyone who purchased Christmas cards from Irish Lung Fibrosis Association (ILFA) in 2023.
Our Christmas cards are all sold and we will not be getting more stock at this time.
Thank you for your support.
If you would like to make a donation to the Irish Lung Fibrosis Association this Christmas, please visit https://ilfa.ie/donate/
If you would like to make a donation to the Irish Lung Fibrosis Association this Christmas, please visit https://ilfa.ie/donate/
ILFA Survey !
A national Interstitial Lung Disease (ILD) Registry is currently proposed to collect information about the number of people diagnosed with lung fibrosis in Ireland. ILFA is seeking the input of patients and healthcare professionals to identify the priorities that should be included in this registry. The purpose of this survey is to help guide those developing the registry to make sure that it meets the needs of all stakeholders.
Patient registries are designed to collect anonymous, relevant, and appropriate information about people diagnosed with specific health conditions. Registry information is valuable to help understand how many people are diagnosed with a condition, and to plan for future healthcare resources and services.
Please complete the survey at the following link.
The next ILFA Patient Information Day will take place on Saturday 18th November from 11am to 1pm, via Zoom. Join us online to learn more about lung fibrosis and maximising your health. All are welcome. Speakers will include
1. Professor Anthony O’Regan, Respiratory Consultant, University Hospital Galway
2. Olive McCafferty, Respiratory Physiotherapist, Mater Hospital
3. Patricia Davis, Clinical Nurse Specialist, Respiratory Integrated Care, Wicklow
4. Lindsay Brown, Respiratory Advanced Nurse Practitioner, St Vincent’s University Hospital
5. Leah Harrington, Health and Wellbeing Coordinator, Living Well Programme, HSE
Register here
https://us06web.zoom.us/…/reg…/WN_
LKJbuDLATxS7Lg-vP8z–Q or call 086 871 5264 or email info@ilfa.ie
LKJbuDLATxS7Lg-vP8z–Q or call 086 871 5264 or email info@ilfa.ieThe Irish Lung Fibrosis Association (ILFA) seeks to recruit a full time Chief Executive Officer to lead the charity through an exciting development phase and become more sustainable for the future
bit.ly/ILFACEO
bit.ly/ILFACEO
We’re delighted to unveil the 2023 Christmas Cards from the Irish Lung Fibrosis Association (ILFA). We hope you’ll like the festive designs and will consider supporting ILFA this Christmas. Our cards are made in Ireland and are available to order from ILFA by emailing info@ilfa.ie or calling 086 057 0310
1 pack of 10 cards (2 cards each of 5 designs) costs €6
2 packs cost €10
2 packs cost €10We would be grateful for any donation towards postage and packing costs if you can affort this.
The Irish Lung Fibrosis Association will host an online “Let’s Talk Cognitive Behavioural Therapy and Psychological Support” session on Monday 6th November 2023 at 2pm. Our guest speaker will be Lynn Fox, Advanced Respiratory Nurse Practitioner at the Mater Misericordiae University Hospital. Register by calling 086 871 5264 or emailing info@ilfa.ie
