Let’s Talk Oxygen for Pulmonary Fibrosis

“Let’s Talk Oxygen for Pulmonary Fibrosis” with Lindsay Browne, Respiratory Advanced Nurse Practitioner at St Vincent’s University Hospital, will take place on Wednesday 9th November 2022 @ 4pm via Zoom.
Oxygen tankPlease register in advance by calling 086 871 5264 or emailing info@ilfa.ie
Questions can be submitted in advance via email.
We’re delighted to unveil the 2022 ILFA Christmas Cards.Selection of Christmas card designs
We hope you’ll like the festive designs and will consider supporting ILFA this Christmas.
Our cards are made in Ireland and are available to order from ILFA by calling 086 871 5264 or emailing info@ilfa.ie
1 pack of 10 cards (2 cards each of 5 designs) costs €6
2 packs of cards cost €10

ILFA Patient Information Day

The next ILFA Patient Information Day will take place virtually on Saturday 5 November 2022 from 11am to 1pm.
Our speakers include
Dr Liam Chawke – Respiratory Consultant, Kerry University Hospital
Lindsay Browne – Respiratory Advanced Nurse Practitioner, St Vincent’s University Hospital
Eimear Bell – Respiratory Physiotherapist
Carita Bramhill – PHD Researcher, Trinity College Dublin
Register via the Zoom link below or call ILFA on 086 871 5264 or email info@ilfa.ie.
https://us06web.zoom.us/webinar/register/WN_PX7t6VjWSl2Vk63TxUIxWw

 

Patients and carers are invited to ILFA’s online discussion entitled “Let’s Talk Unmet Needs for Lung Fibrosis

Let’s talkPatients” with team members from The BioInnovate Program based in University of Galway. The program takes a ‘Needs Led Innovation’ approach (process) to create novel healthcare solutions to previously unmet and unrecognised problems.

 
The 2022 Respiratory and Anaesthesia Team come from clinical, engineering and business backgrounds. The team is keen to speak to patients on the challenges of their condition. The team hopes to identify a broad range of needs which could have new improved solutions for patients and users developed.
 
Join us online on Monday 24th October from 4-5pm to discuss your specific challenges or unmet needs from diagnosis, treatment or day to day living with your condition. Do you face
-Challenges with medication?
-Oxygen support?
-Challenging symptoms?
-Specific support areas / needs – things you find that help but are hard to get
 
If you would like to take part, please register in advance by emailing support@ilfa.ie

ILFA Newsletter Autumn 2022

The ILFA Service of Prayer and Reflection will take place on Saturday 15th October at Our Lady of Mount Carmel Whitefriar Street Church, Aungier Steet, Dublin 2 at 4pm. Please let us know if you plan to join us so we can organise numbers for some light refreshments afterwards.

During the service, we will light candles for those patients whose names have been submitted to ILFA by family members. Please email info@ilfa.ie or call 086 871 5264 by 7th October if you would like your loved one remembered.

The service will be live-streamed and available to watch via the church website www.whitefriarstreetchurch.ie, for those who cannot attend the church in person.

If you cannot attend, we encourage ILFA members to come together virtually as a community and light a candle in their home at 8pm on the evening of Saturday 15th October to support or remember loved ones affected by lung fibrosis. You can send your photos to info@ilfa.ie if you would like to share your images.

ILFA is pleased to announce the start of a new ‘Sing Strong for Pulmonary Fibrosis’ class with Ciara Meade, Choir Mistress,

The classes will take place every Wednesday at 12.30pm starting on 21 September for 12 weeks. The online class is free of charge to lung fibrosis patients registered with ILFA. No singing experience or even a good singing voice needed.

All are welcome to this fun, sociable and beneficial class.

Email info@ilfa.ie to register.

 

The ILFA Service of Prayer and Reflection will take place at Our Lady of Mount Carmel
Church, Whitefriar St,Stained glass window

Aungier Street, Dublin 2 on Saturday 15th October at 4pm. We are delighted to return to an in-person  event and look forward to welcoming our guests. The service may also be live-streamed (to be confirmed).

During the service, we will remember those who have been lost to lung fibrosis with the lighting of candles. If you would like your family member included on the remembrance list, please email info@ilfa.ie with the person’s name and the year they passed away if known. Please note that all names must be submitted before 1st October 2022 and we will not automatically include names from previous years.

We hope you will join us in Dublin for this uplifting community event.

“Let’s Talk PPI”

Join ILFA on Monday 18th July at 4pm for our “Let’s Talk PPI” information session.
PPI in research means research carried out ‘with’ or ‘by’ members of the public rather than ‘to’, ‘about’ or ‘for’ them.
ILFA is committed to PPI to ensure patients’ and carers’ perspectives and priorities influence our research. This year ILFA plans to set up a PPI Research Advisory Group to inform our research activities, enhance collaborations with researchers and support and influence research relating to lung fibrosis.
Dr Michelle Flood and Dr Chiara DeSanti from the School of Pharmacy and Biomolecular Sciences at the Royal College of Surgeons of Ireland will join us to discuss PPI for lung fibrosis patients and asnwer questions.
Email info@ilfa.ie or call 086 871 5264 to join.
All are welcome.

 

 

We need your help please …Computer screen announcing an online survey
ILFA has developed a Patient and Carer Survey to understand the physical, emotional, and financial impact of living with Lung Fibrosis in 2022. The intended audiences for this survey include ILFA members who are Lung Fibrosis patients, those who have received a lung transplant for Lung Fibrosis, as well as caregivers to people diagnosed with Lung Fibrosis. The survey takes about 10 minutes to complete and there is a chance of winning a One 4 All voucher (€100 for the winner and €50 for the runner-up).
ILFA will use this anonymous information to campaign for greater awareness of Lung Fibrosis. Please complete the survey via this link by July 12th 2022 https://bit.ly/ilfa22
Alternatively you can call 086 871 5264 if assistance is needed.