Patient Charter

The National Patient Charter for Idiopathic Pulmonary Fibrosis

ILFA developed the National Patient Charter to support Idiopathic Pulmonary Fibrosis (IPF) patients and their families, empower them to look for best treatment and give them a clear expectation of the standard of care they should receive.  The charter was developed with the input of IPF patients and carers, health care professionals and professional respiratory organisations.

The National Patient Charter for IPF identifies six key areas needed to ensure IPF patients get the best level of care.

As an IPF patient, you should be entitled to:
1. Early and accurate diagnosis with multi-disciplinary team input.
2. Clear and concise information about IPF in plain language.
3. Access to appropriate medicines and oxygen therapy.
4. Early referral to pulmonary rehabilitation and exercise programmes.
5. Early referral to the National Lung Transplant Unit for lung transplant assessment, with a minimal emphasis on your age.
6. Access to social, practical and emotional supports.

ILFA_National Patient Charter for Idiopathic Pulmonary Fibrosis_(2019)

Watch a video about the National Patient Charter for Idiopathic Pulmonary Fibrosis that features some healthcare experts working in Interstitial Lung Disease.