ILFA Survey for patients and healthcare professionals

ILFA Survey !

A national Interstitial Lung Disease (ILD) Registry is currently proposed to collect information about the number of people diagnosed with lung fibrosis in Ireland. ILFA is seeking the input of patients and healthcare professionals to identify the priorities that should be included in this registry. The purpose of this survey is to help guide those developing the registry to make sure that it meets the needs of all stakeholders.

Patient registries are designed to collect anonymous, relevant, and appropriate information about people diagnosed with specific health conditions. Registry information is valuable to help understand how many people are diagnosed with a condition, and to plan for future healthcare resources and services.