Let’s Talk Christmas

Let’s Talk Christmas! The ILFA Christmas Jumper Support Group Meeting will take place on Friday 11th December at 4pm.

Our special guest will be Irene Byrne, Respiratory Physiotherapist at the Mater University Hospital.

Why not put on your festive Christmas jumper (the louder the better!), find a Christmas hat, organise a cuppa or a tipple and join us for some virtual mince pies!
All are welcome!

To register, call Gemma on 086 871 5264 or email info@ilfa.ie

ILFA’s next Let’s Talk online support group meeting will take place on Tuesday 8th December at 2pm via Zoom.

Our invited guest speaker is Advanced Nurse Practitioner Lynn Fox, Mater Misericordiae University Hospital.

Register in advance by emailing info@ilfa.ie or calling 086 871 5264

In April-May, ILFA conducted a research survey on the impact of COVID-19 on patients, caregivers and healthcare professionals. We had a great response with over 200 people sharing their experiences with us. The survey results have been incorporated into infographics and are shared here.

Thanks to Danny Sheahan, lead researcher with Invisio Ltd. for his help with conducting the survey and analysing the results. Sincere thanks also to Boehringer Ingelheim, Roche Products Ireland and the European IPF & Related Diseases Federation (EU-IPFF) for supporting this valuable research.

 

Summary data

Summary Infographic

 

Patient results

Patients infographic

 

Caregiver results

Caregiver Infographic

 

Healthcare professional results

Healthcare professional infographic

We’re delighted to share our 2020 Christmas card designs with you and let you know that the cards are now available to order.
Each pack contains 10 cards – 2 cards each of 5 designs. One pack costs €6 and two packs cost €10.
For a limited time, we will give 5 packs for the price of 4!!!
Please help raise awareness of lung fibrosis this festive season.
Call 086 871 5264 or email info@ilfa.ie to place your order.

Let’s Talk Christmas! The ILFA Christmas Jumper Support Group Meeting will take place online on Friday 11th December at 4pm.

Our special guest will be Irene Byrne, Respiratory Physiotherapist at the Mater University Hospital.

Why not put on your festive Christmas jumper (the louder the better!), find a Christmas hat, organise a cuppa or a tipple and join us for some virtual mince pies!

To register, call Gemma on 086 871 5264 or email info@ilfa.ie

Please let us know if you have a festive party piece that you would like to perform via Zoom.

The European IPF and Related Disorders Federation will host a webinar on COVID-19 and Pulmonary Fibrosis on Tuesday 1st Decemeber at 6pm GMT.
The invited speaker is Professor Gisli Jenkins, a global leader in IPF research.
Please register here
The next ILFA Patient Information Day will take place online on Saturday 28th November from 11am until 1pm.
The meeting will take place using the Zoom online platform.
Our speakers will include
– Dr Michael Henry, Respiratory Consultant at Cork University Hospital, Cork
– Carmel McInerney, Respiratory Nurse Specialist at Ennis Hospital, Clare
– Debbie Gibbons, Respiratory Physiotherapist at St Francis Hospice, Dublin
– Sandra Murphy, Dietitian at the Mater Misericoridae University Hospital, Dublin
We hope you can join us to learn more about pulmonary fibrosis from experts in the field.
Register via the link https://us02web.zoom.us/webinar/register/WN_DbqfXcipTEGr7TeovgknMg
Alternatively call 086 871 5264 or email info@ilfa.ie to register for this free online event.
The Irish Lung Fibrosis Association is delighted to have been accepted as a member of Care Alliance Ireland -a national network of voluntary organisations supporting family carers. The alliance aims to raise awareness & ensure the role of family carers is fully recognised and valued by society in Ireland.
See www.carealliance.ie for more information.
Calling all healthcare professionals … the Irish Lung Fibrosis Association (ILFA Ireland) is pleased to offer educational bursaries to respiratory healthcare professionals working with lung fibrosis patients to study Cognitive Behavioural Therapy (CBT). The course will be delivered online (January 2021) and will require a minimum commitment of 15 hours e-learning & 10 hours participatory (Teams & skills practice) online sessions.
The course will cover:
  • CBT theory
  • Assessing patients using the CBT model
  • Cognitive and behavioural techniques
  • Case study practice and presentations
After completing this course, you should be able to:
1. Understand the basics of CBT
2. Understand why CBT is useful for the treatment of depression and anxiety
3. Identify patients under psychological distress
4. Use basic CBT skills and techniques to help address psychological distress.
Please email info@ilfa.ie for an application form if you are interested in applying for an educational bursary for CBT Training. The closing date for applications is Monday 16th November.

Huge thanks to all the ILFA community near and far who lit candles all over Ireland and overseas in support of lung fibrosis patients and families and to remember loved ones who have passed away.

2020 has been an incredibly difficult year for everyone and it was a very special way to come together, though apart.

We were delighted to have such amazing support for this event. Thank you all!