Prospectus Report Launch – Save the Date

ILFA has advocated on behalf of lung fibrosis patients and the greater lung fibrosis community for more than 20 years. On 11th June we will once again return to Leinster House, this time to brief members of Dáil Éireann using a report ILFA commissioned on the inequitable state of healthcare for lung fibrosis patients in Ireland with recommendations for improvement. This groundbreaking report was delivered by Prospectus Management Consultants, a leading research company in Ireland. 

As part of the report launch, we will be demanding the Government and the HSE live up to the promises they have made. Specifically:

1. Release the 500,000 euros in funding allocated in Budget 2025 for lung fibrosis. That money should go toward a disease registry, pulmonary rehabilitation, grants for patients to offset the high cost of electricity and travel, and to hire a nurse to increase ILFA’s medical expertise.
2. Staff the Clinical Pathway Advisor role (originally promised more than two years ago) so that work can begin on building a foundation for a Clinical Programme.
3. Investigate the delays and service issues related to the oxygen contract changeover (originally due to be completed in November 2024 but still ongoing) and look into the dramatic decline in lung transplants in 2024 and 2025.

Please save the date and support our work. On launch day (11th June) there will be media attention. We ask that you share the news stories across your network of family and friends. In addition, we will publish the report on our website along with a “Contact Your TD” toolkit. Follow the instructions in the toolkit and write, call or visit your TD to demand that lung fibrosis patients receive the care they need.