An online World Café-style workshop with patients, carers, family members, healthcare professionals and industry representatives will take place via Zoom on Saturday 17th April for approximately 3 hours.
The workshop will allow stakeholders to share ideas on how to address the needs and priorities of the pulmonary fibrosis community. We want to gather this data to help us campaign for a dedicated Clinical Care Programme for Lung Fibrosis. Such programmes exist for other serious health conditions and have dedicated health funding. A structured clinical care programme with a standard model of care is needed to meet the healthcare needs of our patients. It is even more relevant now, as it is anticipated that there may be an increase in the incidence of pulmonary fibrosis from COVID-19 infection.
If you would like to take part in the online ILFA World Café, please register your expression of interest by emailing firstname.lastname@example.org or calling 086 871 5264.
This event is made possible thanks to funding from the Community Foundation of Ireland and RTE Does Comic Relief.